February 29 marks World RARE Disease Day.
1 in 10 Americans are affected by RARE disease and more than 350 million people are affected worldwide. 75% of RARE diseases affect children and 30% of children with a RARE disease will die before their 5th birthday.
The Global Genes Project is a grassroots effort to bring more awareness to the rare disease community as more awareness will lead to more support and funding which will aid in developing treatments and cures. Currently only 5% of rare diseases have any sort of treatment; there are no cures.
What you can do:
- Join the “1 Million for RARE” movement and like the Global Genes Project Facebook page: http://www.facebook.com/globalgenesproject
- Tweet @GlobalGenes. Use #1Mil4RARE
- Forward to a friend!
I am extremely thrilled to announce that Mom Bloggers for Social Good’s newest partner is Water.org! Water.org is a nonprofit organization that has transformed hundreds of communities in Africa, South Asia, and Central America by providing access to safe water and sanitation.
When I was in Kenya last summer I saw how important clean water is to everyone who lives on the continent. The fact that there isn’t complete access to clean water everywhere was staggering.
And it’s equally hard to comprehend that over 4 million people die from water diseases every year. We often take for granted that we don’t have to walk miles to get water and spend time to boil it and that we have access to clean water in our homes. We just cannot fathom living without clean water and sanitation until you see it.
I met this mother and her son in Kisumu, Kenya last year. She told us she had to walk two miles to get water for her entire family. Two miles! Process that for a moment.
Everyone deserves access to clean water and sanitation. It’s a basic human right.
I cannot wait for members of Mom Bloggers for Social Good to spread the word about the great work Water.org does for people the world over.